I did ask about sleep meds but he said he was worried about the interactions. Complications have lost a lot of their impact when the worst that can happen, while not yet desired, would only be reaching the end that's coming anyway. I'm still wondering if this new regimen is something I should start and just skip to hospice, but I'll do it for the kids even though we've talked about it all and they will leave it up to me.
I'm sure many docs, especially oncologists, can see the benefits of choice but maybe have seen enough "miracles" there's always doubts. Besides that whole Hypocrite Oath ;).
You might as well try 'em. Your life sucks but it's not that shitty - yet. You can still do things like use the bathroom yourself, feed yourself - with some help with prep, and shit like that. I'm pretty sure you're stronger than that.
I don't think it's a matter of strength so much as knowing when the Q vs Q balance is irreversible. It's also pretty damn tiring after all this time and I get frustrated. Constant discomfort is awfully draining, as you know, and if/when that becomes untreatable it's more difficult. The sweet release of sleep is also a good distraction and 24 hrs a day gets pretty long when you are aware of each minute. Also the burden on others adds to the mix. I'll be in a better mood if these meds kick in and I can rest a little, but this is happening more and more lately.
Oh, I know of constant discomfort. You never get used to it, you just kinda accept it.
As for the quality of life thing, gotta agree. I'm just not sure what will be the limit. I'm a pretty tough old bird.
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