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I have a very severe, very rare post birth defect. It's a mix between a terminal lung disease, cardiovascular problem, tendon elasticity problem and cognitive issue. Think cystic fibrosis with tachycardia, with a mix of mild dementia. The prognosis is ... shit to say the least. Some of the major problems though that have become worst over time are becoming even more apparent now. I noticed that my lungs sound horrible, and have become so reactive to the elements, i get sick close to once a week. I can barely do any exercise anymore, since that make me sick too. Sadly I know how this ends, and it ends in a corpse, and the severity of the symptoms tell me that the condition is accelerating in its decline. I could get away with being healthy looking 10 years ago, but now, its become clear my body is failing on me. The problem is its getting really hard to bullshit this disease as inconsequential at this point

I have a very severe, very rare post birth defect. It's a mix between a terminal lung disease, cardiovascular problem, tendon elasticity problem and cognitive issue. Think cystic fibrosis with tachycardia, with a mix of mild dementia. The prognosis is ... shit to say the least. Some of the major problems though that have become worst over time are becoming even more apparent now. I noticed that my lungs sound horrible, and have become so reactive to the elements, i get sick close to once a week. I can barely do any exercise anymore, since that make me sick too. Sadly I know how this ends, and it ends in a corpse, and the severity of the symptoms tell me that the condition is accelerating in its decline. I could get away with being healthy looking 10 years ago, but now, its become clear my body is failing on me. The problem is its getting really hard to bullshit this disease as inconsequential at this point

(post is archived)

[–] • 5 pts

we're all slowly dying

[–] • 1 pt

from the second we are born.

[–] • 1 pt

Yeah, not really. Life has an arc. It defines a curve on a graph. We are like flowers. We bloom, then we blow. During the blooming phase, we get stronger and better. Then we reach a break-even point, and start to fall down the backside of the curve. It's not all downhill from day one.

[–] • 3 pts

I will pray for you. I do not share what you have but I do understand pain. You will have a new body one day. Sometimes God removes things so that he may add onto. God Bless!

[–] • 3 pts

Would TRIKAFTA help you? It has been working miracles with actual CF patients. Or is it not a drug your ailment is a candidate for? If I were in your shoes I think I would move to Estes Park, CO. It's the place where Tuberculosis patients went in olden days due to the weather and climate helping them to breathe easier. At the very least, the scenery there is so beautiful it's not a bad place to spend remaining years. I would also look into water fasting, especially for the mild dementia as water fasting studies have demonstrated it can help to rid the brain of lewy bodies.

I do wish you healthier days and will pray for you.

[–] • 2 pts (edited )

Take the time to listen to this. I mean really listen to it: https://youtu.be/B-5G4D-CddQ

I’m not just spouting theory at you. I was healed of a terminal illness as an infant. Science and doctors couldn’t and didn’t do anything for me. I wasn’t supposed to live to be 3 months old. I’m in my early 40’s now.

Luckily for me, I have family who actually believes what the Bible says. They claimed my healing through their authority in Christ. Against all scientific/fleshly odds. Arrogant doctors telling them I would die and just to give up on me. I could go on and on. Our God is bigger than all of that.

Jesus is the same today as he ever was. The new covenant is no different now than it was in the time of Acts. We are what’s changed. Churches and most Christians don’t preach or exercise the authority given to them anymore. It’s a shame, but it’s the truth.

And don’t even question whether it’s God’s will for you to be healed. It is his will for everyone to be healed.

I assume you’re a Christian by your handle. Ok then, you already qualify.

Watch the video and listen closely.

[–] • 2 pts

Today you are not dead, and you're still functional, that's for the good news

Now the bad news is that one day you'll be completely screwed by your condition and you'll die

And it's not today

[–] • 1 pt

How old are you?

[–] • 1 pt

What are you going to do about it?

[–] • 1 pt

You made it into adulthood. Congratulations, you beat out millions around the world who die in childhood every year. We're all going to die. None of us get out of this alive. If you worship the Devil and drink baby blood, you may be able to extend your normal lifespan by around 20 years, but after that you die anyway. We're all going through the same gate. What happens then is a matter of religious faith. But the one certainty in life is death. So if you die a few decades earlier than someone else, is that really the end of the world? You got to do dumb shit like the rest of us. You got to post on the Internet. You enjoyed the taste of macaroni. You stepped into a cold shower. You stubbed your toe. You cried yourself to sleep at night over the unbearable tragedy of human existence, just like the rest of us. Enjoy what you've got left, when you can. That's all any of us can do.

[–] • 0 pt

Sometimes, I feel like I don't have much time left. And there's nothing outwardly wrong with my health, according to recent physicals.

It's just a feeling, I can't explain it. I think I can sympathize with you on this a bit.

It's a gutting feeling. Like your own body is betraying you and all you can do is wait for the worst. This has the... silver lining, I suppose, of making me value every moment all that much more.

[–] • 0 pt

Most of us here have some form of dementia

[–] • 0 pt

At least you wont have to wake up to what the world has become in 40 years as a feeble and vulnerable old man. I fear that more than death.

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